Wednesday, September 26, 2012

Ok so it's been a while..

I guess if I needed an excuse for not posting and keeping people up to date with my progress it would be that I'm just so darn fatigued.

I'm heading towards the end of cycle two of the Gemcitabine chemo, I had the second session on Wednesday last week and now have no more till next Wednesday.

I've been suffering horribly from lung problems and fatigue. If I stand up I become incredibly breathless and my heart rate becomes very rapid. Sometimes I feel like I'm on the verge of passing out. I've just re-read my blog from early 2009 and I had the same symptoms then, so I guess I shouldn't be too concerned. Perhaps I was expecting an easier ride this time round. Maybe it's just my memory, it blocks out such things and I find myself thinking everything was a breeze in the past.

Sarah and I went to the Cottage in Foxton Beach last weekend for a break. The weather was perfect and I soaked up the suns rays in the courtyard for a few hours. I'm sure I could actually feel the energy flowing into my body. Was very therapeutic.

Sunny Spring day at the Cottage, Foxton Beach.
 
I'm more than a little concerned about my lung function. It's pretty bad and I find that It's a lot more comfortable if I leave the oxygen connected as much as possible. The exception being when we have to drive anywhere like into hospital or up to Foxton. Once there it's straight back on otherwise I feel like I'm slowly suffocating. Coughing leaves me fighting for air. It's a horrible feeling and I have to admit it bothers me quite a lot.
 
Blood counts are still being chased with transfusions of both platelets and haemablobin (via whole blood) every Monday, Wednesday and Friday.
 
My weight is still pathetic at 61kg and refuses to rise much above that. Maybe once the chemo is finished? How long that will be is anyone's guess!
I see Dr D'Souza on Friday for an update, I'm hoping he has a new plan. I'll let you know..
 
..Ron

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